Contact Us

NF Registry

Sponsor

Children’s Tumor Foundation
697 Third Ave, Ste 418
New York, NY 10017
ctf.org


Registry Contact

Kate Kelts
nfregistry@ctf.org
212-344-6633


Institutional Review Board (IRB)

learningirb.org/
info@northstarreviewboard.org

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.


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Visit the National Organization for Rare Disorders home page at rarediseases.org.